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Showing posts with the label Darwyn Danesh

“I am a Canadian, free to speak without fear, free to worship in my own way, free to stand for what I think right, free to oppose what I believe wrong, or free to choose those who shall govern my country. This heritage of freedom I pledge to uphold for myself and all mankind.” ~~ John G. Diefenbaker

How Darwyn’s Death Is Bringing Change to Palliative Care for Children (The Tyee)

Darwyn Danesh was only 16 when he died at home with his family in Greater Victoria in the summer of 2020. He had been diagnosed with subaortic stenosis — a heart condition — and his death was not unexpected. But how he died was unexpected. Over four days that July, Darwyn’s parents struggled to get their son the medical attention, proper pain medication and palliative care he needed to be comfortable as his health rapidly declined. BC Ombudsperson Jay Chalke investigated Darwyn’s death. No one should have to go through the trauma and uncertainty that Darwyn, his parents and his sister went through, Chalke said in an investigation summary included in his office’s 2024-25 annual report, released Tuesday ... CLICK HERE for the full story

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